I wrote what happened on the two separate days. I must tell you that it warmed my heart that my son wanted to cling to me and that he knew that i was safe and that i loved him......here are the stories....
I forgot to let you know about Sophina's pediatrician check up. She is close to 36" tall and weighed in at 32lbs. (i can't wait to see what Ethan is going to be in just about thirty minutes)
Sophina KNEW where we were as soon as we turned the corner and she fought like a bear JUST to get weighed and measured! MAJOR MAJOR fight but NOTHING compared to what happened when she saw us go through thelab doors. PLEASE do not tell me that infants do not remember because THEY DO!!! Does anyone remember her LITERALLY BLOODY feet from all of the pokes that they did OVER AND OVER AND OVER again? Yep, it was TEN MINUTES of screaming where the entire wing heard her. It took THREE of us AND a guard on the chair to get a FINGER PRICK for getting the blood.
Doctor visits will not be fun for her for a very long time.
The good stuff.....i had a hard time not feeling incredible. The doctor was flabbergasted as to what Sophina was eating now. He seriously was at a loss for words!!! He finally said, "if the country was eating like Sophina....the world would be a better place" and went on for awhile. I cannot tell you how much that attitude...the awe of his reaction to what i have been doing and spending so much time on.....did for me. He was thrilled! off to the next appointment.
DAY TWO
Well, once again i was shocked as to the memory of my children but sadly, this time, i have no idea as to why. Ethan did great in the waiting room as the area looked, actually as i think about this, like a preschool room. Another thing that was fun was that he saw a baby and was heading right toward her & i chucked my stuff all down on a chair and QUICKLY went over to be RIGHT THERE. HE WAS SO SWEET!!! He went up and looked right into the baby's face AND lovingly patted the baby's hand BUT.....
AS SOON AS Ethan saw the nurse, he started clinging to my leg and pulling me back and i finally had to hold his arm tight as we had things in our hands. He then got more and more upset as we followed the woman and THEN came to the door....oh my, i had to throw my stuff onto the chair again and gently pick him up....more like PRY him up. THIS was just for the eye and ear exam. Here i was so excited that she didn't have on a white coat as i knew that that sends him into orbit SO i was NOT prepared for a nurse's outfit being an issue. IT DEFINITELY WAS! He was climbing all over me as i was trying to answer the nurses questions and we both realized that there was no way that he would even BE ABLE to take either test as that means that he would be able to communicate and understand things that NEITHER of the twins would know at this point. SO, all of that stress for NOTHING! UGH!
We got him back to the waiting room PRONTO! The next nurse came and i thought that since she was dressed more like an outfit that i would wear that we would be fine BUT we were NOT. SAME response.
He was trying to crawl up me just to get him on the BABY scale as we had to give up on the typical scale. I pried him off of me and it worked and i quickly held him close again. Had to hold him, like i had Sophina yesterday, into a standing position so we could get his height.
SO....Sophina is 32lbs. and is almost 36" tall and so her weight is in the 60% compared to other children with DS and she is in the 50% for her height. ETHAN was almost 39 lbs. which puts him in the 77% and he is 37" tall and that is in the 84%! The nurse could barely talk to me as Ethan was just so full of fear of her :( Oh how i wish i knew why!!! Is he scared like Sophina where she remembers pain or is he scared that these women are going to take him away from his mommy???
The same pediatrician, as he is well known for being the Dr. for the kids with special needs, came in. He is a man. My son loves men....especially ones who do NOT have on a white coat!!! Ethan wasn't full of fear now but instead reserved. (it could be because i sang Only a Boy Named David in between the nurse being there and the dr.......i MUST get it on video) Anyway, the change between the way he acts with men and then with women is so .....well, LOTS of things.....interesting, confusing, frustrating (since his Mommy and sisters ARE female), etc.... It wasn't like now he was trusting the Dr completely as i was still holding a soaked in sweat little boy and i DID have to try to hold him down while the Dr checked the ears.....let's just say that i don't know how great he was able to see and that both of us were feeling like it was warm in the room....i told the Dr that i don't need to exercise as i have the two of them ;) (BOTH of them THREW MAJOR fear-filled craziness when he tried to get close....EVEN THOUGH he was really great with 'bedside manner' and took his time 'getting them to know him'. If i thought that the ears didn't get too much time.....i really don't know if he saw more than a couple of teeth when he went into the mouth.....Ethan has a VERY STRONG mouth, believe me.
NOW, for the fun part. When the nurse was done with her stuff earlier....as soon as she said that she was done, he clapped and said, "bye bye!". I asked him if he could say CHOW and he said bye bye and then she was almost out of the room and he said CHOW! (he hasn't said that for a long while). Another thing that was great was that the Dr was again overwhelmed with how great he is doing physically. He was so thrilled with the nutrition (which was pretty much the same as Sophina's). He was thrilled with well, everything. He said that we were doing the right things on retraining the 'proper behavior' and on the way that his sisters were with him as yesterday i had Victoria and today i had Catherine. He was again just really pleasingly surprised as to how great he looks.
I have to say that i am so RELIEVED as to the response that this doctor has given that i just can't even explain. I AM ALWAYS BLESSED
PS. Follow up things will be with mostly Sophina (as she is the one who had six procedures in her first 5 1/2 months of life....including open heart surgery and a PDA amongst others). She needs to have a heart check up with Dr. Chip and an Echocardiogram in May. She had blood work yesterday and that is being checked with the endocrinologist. They will both need to go to ENT soon and also get their eyes checked. Ethan has an appointment next month for his feet. May is going to be busy!!!
I AM ALWAYS BLESSED
We had a VERY busy day today! We had LOTS and LOTS of snow to move, not only in our driveway but also our deck. Plus, i needed to get some food so we could actually HAVE those Swedish Meatballs that we were SUPPOSED to eat last night (but couldn't leave my house due to the amount of snow when i FINALLY had time to go get the potatoes and vegetables for the meatballs).
Lizzie had seen the meatballs on FB and had been dreaming of having them since last night SO i told her to come over for 'lunch'. Our lunch at our house is closer to 3 than it is to 1pm and today i was hoping for eating time to be 2pm BUT due to the fact that Sophina was REALLY struggling with eating this afternoon, we were late.
Also at about noon, i realized that i had set up a meeting with a lady who wanted to interview me about our two children with Down Syndrome. She was originally from Ukraine and i HAD been thrilled but i got a little panicked as my house was not ready and it was time for the twins to eat AND i was trying to get the food for the rest of us ready for our '2pm' eating!
Well, with a LOT of help from everybody....we did NOT eat at 2pm but at 2:25pm- i actually had to ask if we could start fifteen minutes late! NOT good! (the food however was AMAZING!!! Oh my goodness.....you should have heard us......we were noisy eaters! ;) )
As soon as i saw Alla, it was as if i was back in Bulgaria.....she was obviously from Eastern Europe (so beautiful) and her accent was just as beautiful. It was SO good to have her in our home! i LOVED it. I introduced her to our girls that were at the table. Then, I had a few bites left so i finished that in the kitchen and had our Lizzie talk with her since our Lizzie has been to Ukraine on multiple missions trips. Alla got to meet Sophina and Ethan too (later). She was in our home for over two hours. She heard lots about our family. She was in awe that our faith in Jesus Christ and that it would be one of the main reasons that would affect us so much that we would bring a little boy HOME. She was shocked as to what we do here at home. She just kept asking me about things and her interest was SO exciting. She is a very special lady whom i hope will come back to visit. What was fun was that we just told her about our daily lives and to see someone, outside of people that know us, see our lives brought us all a different perspective. It was refreshing and invigorating and fun and delightful!!!
It was also fun to see her face LIGHT UP when she met Ethan and then Sophina at the end of the interview. She even bent down to their level and spoke with both of them. She was so excited over the information that she had gotten from us.
Ethan seemed out of sorts while she was here (he was only with us for about fifteen minutes) AND after she left. I am still trying to figure out if it could have been from his meeting a woman who brought back memories or if it was just a hard night BUT things were definitely DIFFERENT for the whole rest of the night. Things that are not even typically an issue. What was interesting was that Ethan got "clingy", which is rare. He wanted MOMMY and ONLY Mommy to hold him and he started acting out. SO, she did get to see more than most people do but she seemed unaffected.
It is another case of being so frustrated that i can't KNOW what is going on in his head yet. He IS doing MUCH better with communicating for what he is wanting but it was not that kind of communicating that was needed. I think that it was more about 'emotions'. It is just a really hard part of being unable to figure out the needs of one's child so you can disrupt the stress that the child is feeling. It went on all night too so that is why i am wondering if it WAS a subconscious deal with hearing the accent again. hmmmmm......
So, this was our VERY unique day and was one of the most beautiful days to wake up to the scenery outside....just stunning creation from a Creator who LOVES humor :) I am ALWAYS BLESSED
Lizzie had seen the meatballs on FB and had been dreaming of having them since last night SO i told her to come over for 'lunch'. Our lunch at our house is closer to 3 than it is to 1pm and today i was hoping for eating time to be 2pm BUT due to the fact that Sophina was REALLY struggling with eating this afternoon, we were late.
Also at about noon, i realized that i had set up a meeting with a lady who wanted to interview me about our two children with Down Syndrome. She was originally from Ukraine and i HAD been thrilled but i got a little panicked as my house was not ready and it was time for the twins to eat AND i was trying to get the food for the rest of us ready for our '2pm' eating!
Well, with a LOT of help from everybody....we did NOT eat at 2pm but at 2:25pm- i actually had to ask if we could start fifteen minutes late! NOT good! (the food however was AMAZING!!! Oh my goodness.....you should have heard us......we were noisy eaters! ;) )
As soon as i saw Alla, it was as if i was back in Bulgaria.....she was obviously from Eastern Europe (so beautiful) and her accent was just as beautiful. It was SO good to have her in our home! i LOVED it. I introduced her to our girls that were at the table. Then, I had a few bites left so i finished that in the kitchen and had our Lizzie talk with her since our Lizzie has been to Ukraine on multiple missions trips. Alla got to meet Sophina and Ethan too (later). She was in our home for over two hours. She heard lots about our family. She was in awe that our faith in Jesus Christ and that it would be one of the main reasons that would affect us so much that we would bring a little boy HOME. She was shocked as to what we do here at home. She just kept asking me about things and her interest was SO exciting. She is a very special lady whom i hope will come back to visit. What was fun was that we just told her about our daily lives and to see someone, outside of people that know us, see our lives brought us all a different perspective. It was refreshing and invigorating and fun and delightful!!!
It was also fun to see her face LIGHT UP when she met Ethan and then Sophina at the end of the interview. She even bent down to their level and spoke with both of them. She was so excited over the information that she had gotten from us.
Ethan seemed out of sorts while she was here (he was only with us for about fifteen minutes) AND after she left. I am still trying to figure out if it could have been from his meeting a woman who brought back memories or if it was just a hard night BUT things were definitely DIFFERENT for the whole rest of the night. Things that are not even typically an issue. What was interesting was that Ethan got "clingy", which is rare. He wanted MOMMY and ONLY Mommy to hold him and he started acting out. SO, she did get to see more than most people do but she seemed unaffected.
It is another case of being so frustrated that i can't KNOW what is going on in his head yet. He IS doing MUCH better with communicating for what he is wanting but it was not that kind of communicating that was needed. I think that it was more about 'emotions'. It is just a really hard part of being unable to figure out the needs of one's child so you can disrupt the stress that the child is feeling. It went on all night too so that is why i am wondering if it WAS a subconscious deal with hearing the accent again. hmmmmm......
So, this was our VERY unique day and was one of the most beautiful days to wake up to the scenery outside....just stunning creation from a Creator who LOVES humor :) I am ALWAYS BLESSED