Tuesday, April 30, 2013

Sophina and then Ethan's ped's appointments

I wrote what happened on the two separate days.  I must tell you that it warmed my heart that my son wanted to cling to me and that he knew that i was safe and that i loved him......here are the stories....

I forgot to let you know about Sophina's pediatrician check up. She is close to 36" tall and weighed in at 32lbs. (i can't wait to see what Ethan is going to be in just about thirty minutes)
Sophina KNEW where we were as soon as we turned the corner and she fought like a bear JUST to get weighed and measured! MAJOR MAJOR fight but NOTHING compared to what happened when she saw us go through thelab doors. PLEASE do not tell me that infants do not remember because THEY DO!!! Does anyone remember her LITERALLY BLOODY feet from all of the pokes that they did OVER AND OVER AND OVER again? Yep, it was TEN MINUTES of screaming where the entire wing heard her. It took THREE of us AND a guard on the chair to get a FINGER PRICK for getting the blood.
Doctor visits will not be fun for her for a very long time.
The good stuff.....i had a hard time not feeling incredible. The doctor was flabbergasted as to what Sophina was eating now. He seriously was at a loss for words!!! He finally said, "if the country was eating like Sophina....the world would be a better place" and went on for awhile. I cannot tell you how much that attitude...the awe of his reaction to what i have been doing and spending so much time on.....did for me. He was thrilled! off to the next appointment.


Well, once again i was shocked as to the memory of my children but sadly, this time, i have no idea as to why. Ethan did great in the waiting room as the area looked, actually as i think about this, like a preschool room. Another thing that was fun was that he saw a baby and was heading right toward her & i chucked my stuff all down on a chair and QUICKLY went over to be RIGHT THERE. HE WAS SO SWEET!!! He went up and looked right into the baby's face AND lovingly patted the baby's hand BUT.....
AS SOON AS Ethan saw the nurse, he started clinging to my leg and pulling me back and i finally had to hold his arm tight as we had things in our hands. He then got more and more upset as we followed the woman and THEN came to the door....oh my, i had to throw my stuff onto the chair again and gently pick him up....more like PRY him up. THIS was just for the eye and ear exam. Here i was so excited that she didn't have on a white coat as i knew that that sends him into orbit SO i was NOT prepared for a nurse's outfit being an issue. IT DEFINITELY WAS! He was climbing all over me as i was trying to answer the nurses questions and we both realized that there was no way that he would even BE ABLE to take either test as that means that he would be able to communicate and understand things that NEITHER of the twins would know at this point. SO, all of that stress for NOTHING! UGH!
We got him back to the waiting room PRONTO! The next nurse came and i thought that since she was dressed more like an outfit that i would wear that we would be fine BUT we were NOT. SAME response.
He was trying to crawl up me just to get him on the BABY scale as we had to give up on the typical scale. I pried him off of me and it worked and i quickly held him close again. Had to hold him, like i had Sophina yesterday, into a standing position so we could get his height.
SO....Sophina is 32lbs. and is almost 36" tall and so her weight is in the 60% compared to other children with DS and she is in the 50% for her height. ETHAN was almost 39 lbs. which puts him in the 77% and he is 37" tall and that is in the 84%! The nurse could barely talk to me as Ethan was just so full of fear of her :( Oh how i wish i knew why!!! Is he scared like Sophina where she remembers pain or is he scared that these women are going to take him away from his mommy???
The same pediatrician, as he is well known for being the Dr. for the kids with special needs, came in. He is a man. My son loves men....especially ones who do NOT have on a white coat!!! Ethan wasn't full of fear now but instead reserved. (it could be because i sang Only a Boy Named David in between the nurse being there and the dr.......i MUST get it on video) Anyway, the change between the way he acts with men and then with women is so .....well, LOTS of things.....interesting, confusing, frustrating (since his Mommy and sisters ARE female), etc.... It wasn't like now he was trusting the Dr completely as i was still holding a soaked in sweat little boy and i DID have to try to hold him down while the Dr checked the ears.....let's just say that i don't know how great he was able to see and that both of us were feeling like it was warm in the room....i told the Dr that i don't need to exercise as i have the two of them ;) (BOTH of them THREW MAJOR fear-filled craziness when he tried to get close....EVEN THOUGH he was really great with 'bedside manner' and took his time 'getting them to know him'. If i thought that the ears didn't get too much time.....i really don't know if he saw more than a couple of teeth when he went into the mouth.....Ethan has a VERY STRONG mouth, believe me.
NOW, for the fun part. When the nurse was done with her stuff earlier....as soon as she said that she was done, he clapped and said, "bye bye!". I asked him if he could say CHOW and he said bye bye and then she was almost out of the room and he said CHOW! (he hasn't said that for a long while). Another thing that was great was that the Dr was again overwhelmed with how great he is doing physically. He was so thrilled with the nutrition (which was pretty much the same as Sophina's). He was thrilled with well, everything. He said that we were doing the right things on retraining the 'proper behavior' and on the way that his sisters were with him as yesterday i had Victoria and today i had Catherine. He was again just really pleasingly surprised as to how great he looks.
I have to say that i am so RELIEVED as to the response that this doctor has given that i just can't even explain. I AM ALWAYS BLESSED
PS. Follow up things will be with mostly Sophina (as she is the one who had six procedures in her first 5 1/2 months of life....including open heart surgery and a PDA amongst others). She needs to have a heart check up with Dr. Chip and an Echocardiogram in May. She had blood work yesterday and that is being checked with the endocrinologist. They will both need to go to ENT soon and also get their eyes checked. Ethan has an appointment next month for his feet. May is going to be busy!!!


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